Additional Resources

News stories on Genomics, Ethics & Policy

• Scientific American story on incidental findings <http://www.scientificamerican.com/article/what-rare-disorder-is-hiding-in-your-dna/>  Incidental findings in genomic medicine are findings that emerge during a test for something else, and they pose a number of problems. We consider this issue further in unit 7 on privacy.
• An interesting news story on sequencing a fetal genome <http://www.bionews.org.uk/page_474185.asp>
• Designer babies -FT opinion piece <http://www.ft.com/intl/cms/s/0/8fc7854a-7bb3-11e4-a695-00144feabdc0.html#axzz3ppegHD3F>  Short opinion piece on the ethics of designer babies - we'll return to this question in unit 6.
• The Guardian article on human genome sequencing <http://www.theguardian.com/science/2013/sep/09/genetics-ethics-human-gene-sequencing>

Links to Discussions and Papers

• Lecture by Bartha Knoppers on "Genomics: from persons to populations and back again" <http://www.nrcresearchpress.com/doi/full/10.1139/gen-2013-0148?mobileUi=0.VJNZtBBAMw>
• Caulfield et al - opinion piece on ELSI and genomic policy <http://www.biomedcentral.com/content/pdf/gm425.pdf>  This controversial opinion piece in Genome Medicine reflects on the influence of research into Ethical, Legal and Social Impacts (ELSI) in the formation of policy about genomic medicine.
• Andrews and Paradise on "Gene Patents: The Need for Bioethics Scrutiny and Legal Change"  <http://digitalcommons.law.yale.edu/yjhple/vol5/iss1/13/>

Links to useful videos  

• Obama on genetics and policy (especially on personalized medicine) <https://www.youtube.com/watch?v=g5140mlC3Uk>
• Amy McGuire on Ethical, Social and Legal issues in Genomics <https://www.youtube.com/watch?v=9GHScUIyRhE>
• The Political Implications of Human Genomics  <https://www.youtube.com/watch?v=1CpDFsDPMCI>  A discussion on the rapid growth of genomic science, how political views and public policy have not caught up, and its likely effect on our identities and on the criminal-justice system (you-tube description) from the John W. Kluge Center at the Library of Congress by Prof Jennifer Hochschild.

Websites of Relevant Individuals and Institutions  

• Genome Web site - useful up to date news <https://www.genomeweb.com/>
• Home page, Wellcome Trust Sanger Institue for genomic research site <https://www.sanger.ac.uk/>
• National Human Genome Research Institute - Policy & Ethics Issues <http://www.genome.gov/27527631>
• World Health Organization - ELSI and human genomics  <http://www.who.int/genomics/elsi/en/>

Links to background info about genomics and genetics  

• Human Genome Project <http://web.ornl.gov/sci/techresources/Human_Genome/index.shtml> The section on Educational Materials provides useful background information.
• Brown's Genomes 2 <http://www.ncbi.nlm.nih.gov/books/NBK21128/> Introductory textbook available through PubMed.

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