Data Ethics Toolkit for the Participatory Sciences

Author(s)
Caren Cooper
Lisa Rasmussen
Elizabeth Jones
Parent Collection
Publisher
Citizen Science Association
Year
2023
DOI
https://doi.org/10.18130/6tg8-7c78
Rights
Use of Materials on the OEC
Discipline(s)
Computer, Math, and Physical Sciences
Life and Environmental Sciences
Social and Behavioral Sciences
Teaching Ethics in STEM
Research Ethics
Topics
Bias in Research
Big Data
Community and Participatory Research
Confidentiality
Cultural Awareness and Sensitivity
Data Management
Diversity
Social Responsibility
Teaching Ethics
Ethical Decision-Making
Instructor Materials
License
CC BY-SA
Supporting Files
PDF - Data Ethics Toolkit for the Participatory Sciences23.56 MB
Description

The Data Ethics Toolkit for the Participatory Sciences is a resource developed for considering ethical issues surrounding participant-generated data. It was built collaboratively by and for practitioners of citizen and community science. The toolkit aims to help project leaders understand their role as data handlers in identifying, satisfying, and/or balancing ethical obligations of a project to participants, partners, science, and society. The toolkit begins with the Data Governance Tool as a foundation for many decisions in the project.

Body

The online tutorial version of the Toolkit is here: https://scistarter.org/training-dataethics

A PDF of the toolkit is available for download in the sidebar to the left. 

Notes

The Editors would like to acknowledge, with our deepest gratitude, the many members of the participatory sciences community who made this project possible. Individuals mentioned on page 3 of the Toolkit, in addition to approximately fifty individuals who contributed but wish to remain anonymous, have been integral to the project. Thanks to their input, the Toolkit reflects both areas of broad agreement and areas of divergent priorities and values.

This material is based upon work supported by the National Science Foundation under Grant No. [1835352], “Establishing Norms of Data Ethics in Citizen Science.”

Citation
Caren Cooper, Lisa Rasmussen, Elizabeth Jones. . Data Ethics Toolkit for the Participatory Sciences. Online Ethics Center. DOI:https://doi.org/10.18130/6tg8-7c78. https://onlineethics.org/cases/data-ethics-toolkit-participatory-sciences.