Unit 7 - Genetic Data and Privacy

Author(s)
Claire Palmer
Penny Riggs
T.J. Kasperbauer
Jeremy Johnson
Lauren Cifuentes
Seung Won Park
Jamie McQueen
Parent Collection
Genomics, Ethics and Society Course
Year
2015
Rights
Use of Materials on the OEC
Discipline(s)
Genetics and Genomics
Life and Environmental Sciences
Topics
Confidentiality
Data Management
Diversity
Emerging Technologies
Governance
Human Rights
Human Subjects Research
Informed Consent
Law and Public Policy
Privacy and Surveillance
Responsible Innovation
Social Justice
Social Responsibility
Instructor Materials
Description

This is the seventh unit in an extensive Course on Genomics, Ethics and Society. This unit (7) deals specifically with ethical issues raised by genomics in the context of privacy and genetic information. Units 1-7 each last approximately 2 weeks, and Unit 8 contains the final case study.

Body

Table of Contents

  1. Unit Navigation and Essential Question
  2. Background
  3. Selected Issues in Depth - Genetic Data and Privacy
  4. Readings
  5. Undergraduate Student Discussion
  6. Graduate Student Discussion
  7. Case Analysis and Instructions
  8. Case - HeLa Cells
  9. Additional Resources
  10. Recommended Readings
  11. Online Resources
Notes

Authors: Clare Palmer, Penny Riggs, T.J.Kasperbauer, Jeremy Johnson at Texas A&M University, College Station and Lauren Cifuentes, Seung Won Park and Jaime McQueen at Texas A&M University - Corpus Christi.

Citation
Claire Palmer, Penny Riggs, T.J. Kasperbauer, Jeremy Johnson, Lauren Cifuentes, Seung Won Park, Jamie McQueen. . Unit 7 - Genetic Data and Privacy. Online Ethics Center. DOI:. https://onlineethics.org/cases/genomics-ethics-and-society-course/unit-7-genetic-data-and-privacy.